Archive forJanuary, 2017

John’s sick

Friday John complained that he felt like he was coming down with a cold. By Saturday and Sunday, he was truly sick. He had a horrid cough, chills and fever, headache, and felt lousy. Yesterday (Monday) he had an appointment with Dr. Marquez, his primary care physician. I was sure he had developed pneumonia again and was certain he’d end up in the hospital, but Dr. Marquez felt it’s bronchitis and he’ll recover with a strong antibiotic.

24 hours later, he does feel better, but not much. He’s grumpy and sound-sensitive. He hasn’t eaten much, although I did fix him a nice lunch (chicken noodle soup and a grilled cheese sandwich). Right now he’s in bed, sleeping.

It’s hard to have him suffering with this additional problem on top of all he’s been through. He said today that he doesn’t know if he can continue to make it if things keep piling on.

I am trying to help him, but he’s very touchy and grumpy which is understandable. I feel like most anything I do will provoke him and I sure don’t want to make him more uncomfortable by doing stuff that makes him feel worse. It’s difficult to know how to help him. He understands that he’s difficult. He’s trying but he can’t help it.

There is nothing worse than trying to deal with a patient who is over-tired, uncomfortable, and unwilling to comply with basic care concerns. That’s John. Hopefully he’ll let me be his care-giver and make him comfortable.

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Nice weather

The temps have ranged from afternoon highs in the mid 70’s to low 80’s and at night down to the 50’s.

We went to Busch Gardens today and enjoyed the 1950’s four-some, “The Diamonds.” They did an a capella version of “Surfer Girl” that I loved.

On the way home from Busch Gardens we were shocked by a near accident. We were on I-75 south. As we passed Big Bend Road, John let out a yell. He’d just witnessed a collision in his rear view mirror Thank heavens we’d just passed the scene so we weren’t involved. Apparently a car decided too late to exit and he t-boned the car beside him. Even in the mirror, John could tell it was really bad. (We were too far past to stop.) I called 911 and no one had reported it so I told them what John had witnessed. John was shook, and so was I.

Checking with Waze traffic app showed “Major Accident” with miles of back up on I-75. Channel 10’s traffic report said “injuries reported.” If we had been a second later, we could have been involved. I thank God we we had just passed that spot.

Shakes you when you realize that what just happened behind you could have involved you. John’s an excellent driver, but when a car whips from one lane to another and you’re in the way, it would be nearly impossible to avoid. I tried but wasn’t able to learn how badly hurt the victims were but I did read that there were injuries.

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Slowing down isn’t all bad

I’ve slowed down, but in a way it’s a blessing because, since John has a severe lung condition, I have easily adjusted to the limitations John’s health problems have presented without feeling deprived in any way. I don’t need to be moving all the time. I’m content to be here, cozied up on my couch, reading a book or watching TV. Life is good.

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Burrrrr! Winter in Florida occurred January 8, 2017

We are surviving “winter 2017” in Florida. This was reported on TV to be the coldest day in a couple years.

When we got up, the outside temperature was 36.4 at our condo. With the heat on, it’s now a cozy 74 inside and 44.6 outside.

I always bring a couple pair of warm sweat pants back and forth to Florida and Michigan. Right now I have on fleecy pants with a loose heavy cotton top. Truly comfortable!

The sun’s out but it’s kinda windy. A short while ago, a pair of sandhill cranes were by the pond. (Maybe the pond water had held the heat.) They’ve moved on, probably looking for a warmer spot.

I will stay inside today. I didn’t get the mail yesterday, but trekking to the mailbox in 45 degree temps doesn’t appeal to me.

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Managing “the system”

We are realizing that, when someone has a major health condition (like John), it is almost a full-time job to keep everything straight. In addition to his Saginaw pulmonologist, John has three Tampa General department head specialists (pulmonary, cardiology, and rheumatology). (Not to mention the three specialists that he had previously.) There is also his primary care physician and a dermatologist.

His appointments and medical tests are scheduled at least once or twice a week. Tampa General appointments are always in Tampa (either downtown across from the hospital or on the Moresani campus).

This morning I got a notice that his blood test results were available on his Tampa General “patient portal.” So I checked. Thank heavens I try to stay on top of things. He’d gone to the Sun City Center Quest Laboratory to have the blood sample taken Tuesday but since it was prescribed by a Tampa General physician, the results are always posted on the “TGH portal.” One test was available, but not the most important liver enzyme test which allows him to continue on the new medication. (That’s the medicine which would cost us $18,000 a month if he wasn’t able to get a grant so we definitely need to stick to the qualifying instructions.)

I tried for almost two hours to get through to Quest. John said on Tuesday he’d asked if they had his “on-going” prescription but none was in his Quest file. That meant that there’d been a mix-up so it was likely that the blood test hadn’t been run. I called the doctor who had prescribed the liver enzyme blood work and his office faxed the prescription to Quest.

Since we couldn’t call the lab (the phone system was just a revolving trap where you could never reach a human), we drove to Quest and sure enough the test hadn’t been done, but they had just received the new prescription so he was able to have it drawn.

What a mess!! John wouldn’t have known, if I hadn’t checked.

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Sorry I’ve been neglectful

I promised I’d post more often, but sadly I haven’t since before Christmas.

Let me catch you up with happenings in our life here in Kings Point, Sun City Center.

On December 20th we attended the Michigan Club Christmas Party. We had a nice time. Funny thing was that in the gift exchange, I got back the trays I’d given away in the same exchange last year.

The 22nd, we went to a Christmas party at the home of Paul and Bunny Hunt, two of our favorite friends. Paul always plans a glorious spread and this year’s was typically wonderful. I felt badly that I hadn’t volunteered to help them set up. Bunny wasn’t feeling well, and although I did what I could, I wish I’d arrived an hour or so earlier to help her.

Christmas Eve we gathered at the home of Canadian friends. This was the first year in many that we hadn’t held a huge gathering at our condo but the party we attend was a great time!

Our Christmas dinner was a simple one for just the two of us: ham, sweet potato casserole, scalloped potatoes, cranberry salad and pie for dessert. It wasn’t like all our previous Christmases with turkey, dressing, mashed potatoes with gravy and all the trimmings, but we were comfortably full and it was a lot easier.

There weren’t many activities scheduled between Christmas and the first of the year but we had two parties New Years Eve evening. The first was at the lovely home of the Coopers (Stephen and Caroline). Food and beverages were excellent. Since that party was from 5:30-7:30, most of the attendees were headed to other New Year’s Eve parties afterward. When we left the Cooper’s we headed to the KP North Club where friends, Jan and Kathy Haynes, had reserved the Studio for a party. In the Studio, there was a gathering of about 30 friendly folks. While we were there, most played cards and again the food was super. We were running out of steam so we headed home before 9:00. At midnight, woke up long enough to wish each other a happy New Year.

2016 wasn’t the best year because of John’s health, but I love being with him even when our activities are limited.

Here it is January 4th. Tomorrow night our country music friends will gather at the clubhouse for some dancing. Although we don’t dance much, we’ll be there enjoying the company. Maybe we’ll stay later for Rockin Rendezvous.

During December John had appointments with various Tampa General medical specialists: pulmonologist, cardiologist, and rheumatologist. I wish he had these high quality specialists in Michigan, but he’ll see them just before we leave in May and have appointments as soon as possible when we get back in October. He does have a good pulmonologist in Saginaw.

He has gained a little strength and endurance, but he’s a long way from where he was a year ago. His oxygen is no longer optional but necessary. When we’re shopping he uses mobility carts, when available. He bought a small one for himself. (He plans to use it when we go to Busch Gardens during the Real Music Series performances from January 16-February 25.)

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