John’s health

Lots of folks know that John was diagnosed with Idiopathic Pulmonary Fibrosis in 2009. IPF is a very serious lung disease. (To be very clear, the available information would say that such a diagnosis is generally a death sentence with, at most, a three to five year life expectancy!)

But John’s doctor in Saginaw is really, really optimistic. She has proven to us that her treatment plan can produce positive results and she has statistics to prove that her, non-standard treatment of early stage pulmonary fibrosis, works. (Notice I said “early stage” because John went to the doctor as soon as he noticed a change in his lung capacity and kept working with doctors until he was diagnosed with a lung biopsy about six months later.)

Here’s what the University of Michigan said about Idiopathic Pulmonary Fibrosis but they aren’t dealing with my husband nor his determination.

So we work with with his Saginaw doctor, and he continues to do very well on her prescribed treatment of Prednisone and Imuran.

Admittedly her treatment plan isn’t recognized as acceptible by most pulmonologists who study Idiopathic Pulmonary Fibrosis, but since it works for John, even his Florida doctor says, “Although I would never have prescribed that treatment, it’s working, so continue following your Saginaw doctor’s suggestions.” (And he added, “You’re lucky you went to her first because I would have told you there is NO treatment but she has one for you which seems to be successful so continue it!”)

So John’s health problem is holding it’s own. He’s physically doing more hard work than he should. He’s definitely not at 100% but he is much better than he was two years ago so we are grateful.

We’re indebted to his Saginaw pulmonologist, Dr. Indura.

She’s really kept him ticking.

Our Florida doctor (who is highly recognized as one of the best in his field) feels that John’s amazing progress means that he must not have pulmonary fibrosis, although when his biopsy was review by the Mayo Clinic they confirmed his diagnosis. Whatever has happened to John shows that prayer and good medicine works. And John receives both.

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