Archive forMay, 2018

Where do I start?

I’m meeting with the estate service a week from today. I am unsure about what they’ll do for me so I’m kind of on hold. I started making a list of stuff I want to keep. There’s more than I thought.

The one area that has me stumped is the china cabinet. I would like to keep some of the stuff from it, but if I do, I’ll need a cabinet in Florida which will match my condo’s furnishings. It might take a while. Eventually I can find something but it needs to be the right piece and until then, the stuff will be boxed up. (And that’s a dangerous practice to get started.)

First major Florida project is to get the “office” converted to storage. (John and I planned to have someone build-in closets and cabinets this past winter, but his health didn’t permit us to start anything.) Additional storage will allow me to have a place to put what I bring from Michigan.

I’d also like to fix or replace the kitchen cabinets. (Again, John and I planned to tackle them but we postponed it this year.) Maybe with a kitchen renovation, more cabinets can be added along the wall where the current “bar area” is located. I don’t want more stuff, but I’d like to be able to conveniently store what I have.

I have other renovations and purchases in mind but they will happen slowly.

I definitely need new bar stools asap and new love seats for the great room TV area. But I don’t want to settle for something that’s only sorta ok. (That’s what’s there now.) I want knock your socks off perfect!

There are also outdoor projects that John hadn’t felt needed to go on our priority list. I’d like to extend the roof over the back patio and brick the driveway and the sidewalk.

I can’t be too hasty. I see things we did wrong in our first round of condo renovations. (Example: I HATE our tile floors. I’d like to do wood in the great room — but that’s someday. Not right now.)

I will eventually purge a lot of stuff from the condo. I need to get stuff out of the attic and get rid of it. The garage needs to be cleaned out.

Believe me, I’m not up to any heavy work, but I can hire someone to do it.

When we first saw the condo, the lady who lived in it had used the dining room as a den/TV area. I now understand that with only one person, a dining room is kind of a waste of space. I won’t do anything right away, but maybe converting that area to a comfy spot to use during the evenings might suit me better than what’s there now. Or maybe I’ll move a TV into the guest room/music room and spend time there. I don’t want to live only in one room.

I don’t want to eliminate a place to dine, but will I ever use it? I guess time will tell. Maybe a folding table and chairs can serve as a dining area, if I need it.

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My conversations with John

Please don’t think I’m “losing it” but most every night I share my thoughts with John. I often talk to him out loud. It calms me.

Maybe he can’t hear me, but I’d prefer to think he can. I love him so much. I didn’t know how much until I lost him.

I still think in the terms of the present. He’s here smiling at me every day, even if it’s from the frame of the photo on the table in front of me. I’m so glad I picked that photo. I tell him how “pretty” he is. (When I would say that to him, he’d say guys aren’t pretty. He was.)

Funny but I just had a strange sensation. I “felt” him next to me. I really thought I’d turn and see him. Of course it didn’t happen, but for a few seconds, I felt like he was in his regular spot at the other end of the couch. Sure would be nice if he was still here. I don’t know if I’ll ever get used to being alone.

I still say “our” house, car, plans. I still think in terms of “we,” and “us,” not I or me. Will it ever change?

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Changes

Today a tree service will take down a bunch of unneeded trees. It had been John’s plan to get rid of two near the street but I added several fruit trees and a half-dead red bud. The red bud is diseased. The apple trees haven’t produced edible fruit for years because we were never here early enough to spring spray them and then we’d leave for the south before we could pick them. The mess under the trees was difficult to manage.

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Sleeping has been difficult

Since my loss of John, I head to bed about 10:30 p.m. and usually fall asleep fairly quickly but I wake up about 1:30 a.m. From then until about 4:00 a.m. I’m lucky if I doze. Too much time to think about the change in my life. Almost always I wake up about 4:00. Sometimes I’m able to sleep a bit more but I’ve been getting up about 6:30.

I have no energy nor motivation. Yes, I want to be back in Florida but I don’t have the house ready for selling. I need to get busy.

I can think of lots of excuses: my back aches, I have to go to shopping, it’s too hot, I don’t feel good.

Little by little I’m gaining ground. I think the best solution is to pick an area and finish it completely. First I’ll tackle the great room, then the dining room, and the master bedroom. When finished those projects will make a decent impact. Tomorrow I hope to work on these rooms. If I take the next week to organize and clean the first floor, hopefully it’ll feel cleaner and less cluttered.

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Computer

I bought a new Surface Book 2 computer/tablet after the hard drive died. I also paid $50+ to fix the old Lenovo computer with a new drive, but I decided to buy a new one anyway.

It was a pricey decision. I don’t know what I was thinking, but it had to do with something to keep my mind off my loss and loss of faith in the Lenovo.

I think I’ll really like the Surface. I don’t plan to work with setting up the Lenovo until I have the Surface as I want it. I may end up selling the Lenovo, but that’ll be decided later. If I sell it for $100-$200, it’ll be a deal for anyone who buys it, but maybe I’ll keep it as a backup computer.

I picked them up yesterday and spent the evening trying to get the Surface running the way I want. There’s still lots to do. All of my programs are in Florida. I could have had Wayne Conklin send them to me, but I figure I can get by with Microsoft Office, and I bought a CD program for Lotus on eBay. It’ll be here early next week. I wish I had that one because it’s one I use the most but in three days I’ll have it.

It’s running good enough that I can go ahead with other chores around here: laundry, cleaning, etc. Already tired.

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Enough!

I’ve been trying to keep my outlook upbeat but yesterday my computer wouldn’t start. up. I finally took it to the Geek Squad. It cost me $200. They assured me it can be repaired. Hopefully I’ll have it about Friday.

Strange thing — When my mom died my computer quit. I ended up having to buy a new one. Maybe this time it’ll be a little less costly.

While I was at Best Buy I talked to the cellphone department about the best upgrade for mine. Maybe I’ll do it.

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Something You Get Through

A Florida Friend sent me Willie Nelson’s latest tune. It was so appropriate for me. I keep playing it over and over.

Here are the lyrics:

Something You Get Through

Willie Nelson

When you lose the one you love
You think your world has ended
You think your world will be a waste of life
Without them in it

You feel there’s no way to go on
Life is just a sad, sad song
But love is bigger than us all
The end is not the end at all

It’s not somethin’ you get over
But it’s somethin’ you get through
It’s not ours to be taken
It’s just a thing we get to do
Life goes on and on
And when it’s gone
It lives in someone new
It’s not somethin’ you get over
But it’s somethin’ you get through

It’s not somethin’ you get over
But it’s somethin’ you get through
It’s not ours to be taken
It’s a thing we get to do

Life goes on and on
And when it’s gone
It lives in someone new
It’s not somethin’ you get over
But it’s somethin’ you get through
It’s not somethin’ you get over
But it’s somethin’ you get through

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Without John!

I can’t believe he’s gone. He was the love of my life. He was a wonderful husband and I couldn’t have done better. I was so fortunate to spend nearly 33 years as his wife.

The responsibilities of his care the past few months weighed on me, but I didn’t mind. He generally accepted his situation with grace and dignity. Yes, there were times when he got a little moody, but he was always apologetic when he realized I was doing my best.

Here are the notes I put together for Tom Bradley (who will officiate at John’s memorial) to use when creating his service. Here are the memories I chose to share.

I don’t know much about John’s youth. I know he followed his brother Jerry everywhere. He was in the Czech dancers group here in Bannister and a member of ZCBJ. He graduated from Elsie High School in 1956. He liked playing baseball and football and his plan was to learn to fly a plane. He was in the air force reserves during the Cuban missile crisis.

John loved the time he spent with his dad, his brother Jerry, and sometimes other relatives and friends hunting in the Upper Peninsula. He’d tell me stories of the long lines waiting for a ferry to take them across the straights and hiding their “kills” so no one would know about their successes. And he also hunted in Bannister, which was also where be picked out and cut our Christmas trees for many years.

I met John at a Parents Without Partners meeting at Swan Creek Banquet Center. He was standing with one of his friends on the sidelines. I couldn’t help but notice him. He was tall, good looking, and definitely stood out.

Funny thing: I had mentioned to one of my co-workers at St. Mary’s Hospital that I was going to the meeting of single elgible adults. (I’d been single for many years.) I kiddingly said, “I’ll go the meeting and hopefully fall in love.” The next morning she asked me if it had happened. My reply was, “Maybe.”

Our first date a few days after that first meeting was dinner at the Michigan House on Bay Road and it was memorable. I’d been given a cat by another “boyfriend.” John and I spent a good share of the evening spraying the cat for fleas. (And NO, I hadn’t wanted a cat especially one that was flea infested.)

We’d met in December 1981. In January 1982, I found out I had a brain tumor (an acoustic neuroma on my brain stem). Even though we hadn’t known each other very long, I leaned on John to get through this health crisis. When I had to fly to Los Angeles in June for the surgery to remove it, John was with me. He didn’t want me to be alone.

We didn’t get married until September 1985, but we were a couple more than three years longer than that and I enjoyed the Skaryd family. Everyone was so welcoming.

Our life was great right from the beginning. We built our lovely home on tiny Lake Cecil in Thomas Township and moved in just before Christmas, December 1986. It was just what we wanted!

John’s career as an Air Traffic Controller in the Federal Government’s Flight Service at Tri-City Airport ended in 1988. They moved his job to Lansing. He could have followed his job or retired. At only 50, he chose to retire.

For a new career, we purchased a historic apartment building (with two businesses on the first floor and eight rental apartments on the second). It was from Lincoln’s time and located in downtown Saginaw next to the Fordney Hotel. John took on the task of renovating it with new bathrooms, kitchens, furnaces, windows, and exterior brick repair.

When he bought the building, the eight low-income apartments on the second floor were fully occupied. One of the apartments came with Ben Parrish, a mentally changed older man.

John soon realized that whenever Ben received his monthly govenment check, he was a mark for the neighborhood thugs to rob him of what he had. Ben’s money would be gone within a few days and he had nothing to eat. John volunteered to become his payee representative and helped Ben survive. He would take Ben shopping, to the barber shop, and spent time with him. They both benefited. He managed his affairs so carefully that Ben actually built up a nest egg.

Sadly three years after buying the building in 1991, most of that Saginaw historic city block burned down including our building. John had just finished with the renovation. It was complete and then it was a pile of rubble.

All residents were rescued, but they all lost everything. Most could handle the loss, but Ben was in dire need. John solicited charities and got Ben everything he needed to furnish a new apartment. Ben continued to be John’s responsibility for several more years.

Without the building, John was again retired.

A month later we went to a music festival in Evart, MI, on July 20th, 1991, and we were hooked by the music of the hammered dulcimer. From then on John used any extra time he had to learn to play this wonderful instrument. We both took it up, but John’s abilities quickly exceeded mine and I soon realized I could never play up to his level. I then took up the autoharp to enhance his playing.

Before long, we were deeply involved in the Michigan music community. We joined a music club in Midland, one in Chesaning, and one in Saginaw. When the directors of the Saginaw group gave up their role, John and I took over and ran the club for the next 20 years. The club was called Saginaw Subterranean Strings Hammered Dulcimer Club. We performed frequently. We had about 50 members and played an average of once a week throughout the area. It was great fun. John was a super leader. For 20 years, we presented three concerts each summer in Haithco Park and a huge two-day SnowFest concert in Frankenmuth, Michigan. John handled all the sound equipment as well as leading the music jams.

After the retirement of Bill Kuhlman, founding chairman of the Midland Dulcimer Festival, John became a co-chairman of that event and held the role for eight years. This was the second largest dulcimer festival in the U.S.

In 1995, I became the workshop chairman and webmaster for the world’s largest hammered dulcimer club, the ODPC Funfest. It was a role I kept until 2015 (20 years). Without John and his understanding support, I couldn’t have done that job. He lead the one-on-one classes and he’d set up the workshop areas. I needed his help, and he was always there, hauling water for the “workshop leader rest area” or helping anyone who needed him.

John lost both his parents within six months in 2001. All the siblings worked together to keep his dad comfortable.

For many years, John’s best friend was George Horny. George had a polka band, the NuTones, which included John on tenor banjo. Like John, George also grew grapes and together they made wine, worked on stained glass, cooked, canned, and made music on Monday nights in George’s barn. George died in 2016. John had lost his best friend!

In addition to playing banjo with George, he also played with the Flint Banjo Club. Riding on their floats and performing with them.

In October 2008, we purchased a condo in Kings Point, the gated part of Sun City Center, Florida. We enjoyed taking ballroom dance lessons and then the more informal country couples style of dancing. John was a great dancer. We danced at least once or twice a week. We had so much fun as a couple. We were part of Oldies but Goodies, and the Baby Boomers, two groups which hold frequent dances and parties. We also helped with the Kings Point Michigan Club. John was always one of the hardest workers. Even this year in February, he was busy serving beer at the Michigan Club’s huge pizza party while he wore his oxygen.

Even after his 2009 diagnosis of idiopathic pulmonary fibrosis (a progressive disease with a three to five-year life expectancy in 97% of cases), he continued to work with me on all our fun social events. Finally, as his lung disease became more limiting, he passed the baton to others and retired from leadership positions. It was just too much for him.

John’s work ethic was unmatched. He’d wear his oxygen with a filter mask as he mowed the yard and picked grapes for the wine he made at our Saginaw home. He’d ride on his handicapped scooter to power wash the sidewalks and driveway at our Florida condo. He was a worker and wouldn’t give up.

Even in October 2017, I helped him pick his grapes so he could make another batch of wine which he brought in large carboys to Florida with us.

(Cute story: A few years ago, John brought several plastic carboys of freshly made wine in the back of our truck. Every time we stopped, I swore I could smell wine. When we got to our Florida condo, half a carboy of wine had leaked out. There was a trail from Michigan to Florida. We laughed about it. We had heard it may be illegal to bring quantities of wine into Florida (we have read conflicting stories). But we felt it was okay because when we left Michigan it was grape juice, when we arrived, it probably had some fermenting but it was still “working.” The authorities could have followed us by tracking the drips.)

The highlight of the past few years has been the friendships we made in our Florida Kings Point community. He was truly likable so he drew folks to him/us. We had so much fun with “our group.” The 29th of April, ten friends showed up to help us pack our truck. They were there for us, and several even came back to tweak John’s “packing” so he’d be satisfied.

I consider the years I shared with John the best imaginable. Our life was nearly perfect. It’s hard to think of my future without him, but I was so lucky to share more than 33 years with him!

I am poorer for his death, but far, far richer for his life.

By Monday, I was swamped with chores that had to be done. There were dozens of phone calls and I have been working to catch up every day.

I had Lincare pick up his oxygen equipment. Spectrum installed cable so I have TV in both the great room and bedroom. Neighbors helped unload the two mobility scooters from the truck. I’ve shopped, cooked, searched through photos, worked to set up a memorial service, and arranged to have the lawn cared for. I’m pooped.

I’ll get through this period, but it’s harder than I ever imagined.

I will eventually get used to life without John but I’m not ready yet.

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All kinds of chores

This week, I have found myself with a lot of work. I don’t mind, but I’ve been totally occupied and I can’t seem to catch up.

Yesterday and today I spent a lot of hours canceling John’s future doctor appointments (which had been scheduled). (Dentist, cardiologist, pulmonologist, urologist, and dermatologist.)

Yesterday his oxygen equipment was picked up by Lincare (so I wouldn’t be charged rental since Medicare payments stop with his death). I also had Spectrum television and wi-fi installed for the house yesterday afternoon. (It was so quiet here without television sounds.)

Today I switched Verizon phone plans. We had gotten by with a limited minutes plan with NO texting. I was paying extra at $30 a month for my phone to become a hotspot when we I needed wifi and didn’t have Spectrum. (I used the hotspot all last summer but now I have Spectrum with wi-fi both in Florida and Michigan.) With all the phone calls I’ve made and received, I switched to a totally unlimited plan so I don’t have to worry about running out of minutes and I’m no longer going to pay for each text I send or receive. It makes more sense. The unlimited plan covers voice, data, and a hotspot. (I would have run out of minutes within the next few days.)

I’ve been trying to find a place to donate John’s Boost Plus (value about $135), and a new light-weight walker.

I also spoke with a lawn care company which works on other lawns in our neighborhood. The fellow will come by tomorrow.

I still need to write out thoughts to be included in John’s memorial service next Thursday, the 24th, and I will write the obituary for the Sun City Observer.

I’m not making much progress.

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John’s gone

We had a rough time getting John off the train in Flint. He’d gotten so weak (even with good oxygen) that he couldn’t walk at all. It took about a half hour for him to make it the length of the train’s car so he would be ready to disembark.

There was supposed to be a wheelchair waiting but they informed us there wouldn’t be. John couldn’t make it. After declaring a crisis, they found a way to get him a wheelchair and we were able to leave the train in Flint. Our limo was waiting for us but it had no electric outlets.

John struggled to use the concentrator the nurse (Frank) had brought with him, but it wasn’t working very well. It was an on-demand unit which would produce oxygen only when John could breathe deeply and he didn’t have that kind of strength.

The ride from Flint to Saginaw was scary. John’s oxygen numbers dropped. I suggested taking him to St. Mary’s Medical Center but John said no he could make it, and Frank, the RN, said his numbers were higher than the oximeter read. I had to believe he was right.

We got home about 11:15 p.m. on May 11th, 2018.

John was able to tell me the code to get the garage door to go up. He was definitely still conscious.

John was so weak. With his nurse on one side and the limo driver on the other, they tried to walk him inside. I ran ahead with the floor model concentrator to get it going.

Frank yelled to me that he needed help. John had collapsed in the garage. He never made it inside the house.

Frank started CPR and I called 911.

All kinds of emergency workers arrived. They shocked him, did more CPR, gave him everything in their arsenal, but he never regained consciousness.

He was no longer alive.

They said he died at 12:20 May 12, 2018, but I think that he died when he collapsed.

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From Orlando to Washington D.C. to Chicago and Home

The first lap of our train ride was miserable. (From 1:30 Wednesday to 7:30 a.m. Thursday.) It swayed. It bounced. It jerked. The only thing good was the floor model oxygen generator we’d brought worked great.

Sleeping was impossible.

Yes, we had a nice sleeper room, but the rough ride made it difficult.

My dinner was pretty good… a burger. John’s meal was acceptable.

In the middle of the night, I saw John leaning over the edge of the bed. He said, “I can’t take it anymore.” But he did, and eventually, we arrived in Washington, D.C.

The first class lounge in the train station was nice. John napped. We relaxed until about 4:00 when we boarded the next train which would take us to Chicago.

It was smooth as glass. Loved it. Our room wasn’t as large, but ok.

We slept well (except I had to crawl into a top bunk which wasn’t easy).

Breakfast was ok. We had another eight-hour layover, but again we were comfortable in the lounge.

While waiting we checked our tickets from Chicago to Flint, MI, and were told they couldn’t promise we’d have an AC plug. (Another $200 to upgrade our tickets.)

When we got on the Chicago to Flint lap of the trip, we found all seats had AC power. The $200 had been spent unnecessarily. But we continued to Flint.

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Before boarding the Train

What a nightmare!

We went by limo to Orlando. Arrived over an hour before the train departure time (thank heavens). As John’s nurse went to finalize the plans, and he discovered we had a major problem.

I had checked the rules for traveling with a firearm because John wanted to get his hand gun home so he could sell it in Michigan. (He has a Michigan Concealed Carry permit.) He had the details all worked out for flying back. To go on a plane, you’d put your firearm in a hard-sided box and lock it. The box would then go into your checked luggage. When arriving at the airport, you were to advise them at the check-in counter that you had a firearm. It sounded easy. We were set.

Then our plans changed.

Monday, after we found out we had to take the train, I checked into rules for transporting a gun via train. The rules stated that we had to “register” the firearm 24 hours before leaving. I called Amtrak and “registered it.” I was assured everything was taken care of.

When we got to Orlando, the train ticket person said we couldn’t travel with the gun. The reason – there was no checking of baggage from Chicago to Flint (the last lap of the trip). Without checking, we couldn’t take it with us. She canceled our tickets to Michigan. We were stuck.

I got busy and called the gun shop where John had purchased his gun in Michigan. I asked if they could help us. They explained that they couldn’t even accept a shipped gun unless it was shipped from registered gun store to registered gun store. If that was the solution, I’d make it work.

I called an Orlando gun shop, the owner came over to the railroad station with his license and picked up John’s firearm. I happened to mention that John wanted to sell it anyway so when he called us back he made John an offer and John sold it . No problem.

Except we had no it tickets from Chicago to Michigan.

I repurchased the tickets ($200) and we were on our way.

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Permission to Travel

Monday the 7th, John headed to Dr. Marquez’s office first thing to pick up the signed Permission to Travel.

Unfortunately, while we were waiting for Dr. Marquez or his assistant to come in, John’s oxygen concentrator died. It just quit. (I have a feeling it hadn’t been working the way it should Sunday. We’d gone to the Conklin’s for dinner, and John could hardly get out to the golf cart to go home.) In the doctor’s office, his oxygen numbers plummeted. The level was so low that there was a concern for his survival. When they got him an oxygen tank, his numbers went back up to acceptable levels, but it was obvious that he couldn’t sustain his breathing without the generator. Apparently, after talking to the insurance company, they decided he couldn’t fly back. If for any reason he didn’t have a reliable source of oxygen, he couldn’t make it.

We were given two options: charter an air ambulance (cost over $20,000) or take a train (and the insurance company would pay for it). Amtrak sounded doable. We’d need to use the insurance company’s oxygen generator and an RN will travel with us.

Plans were firmed up for the nurse (Frank) to come to our house Tuesday evening, the 8th. He checked John out and found that the generator he brought didn’t work well with John’s mode of breathing. It was decided that John would take his floor model and plug it in most of the time.

We left the condo at 8:00 the next morning, Wednesday, the 9th. A limo picked us up. Unfortunately, the generator supplied by Frank continued to give John problems. If he concentrated and worked at it, he could get air from it, but he had to really concentrate.

We got to Orlando.

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We’re in Limbo

We’re about ready to leave our Florida home to fly to Michigan but still don’t know when we’ll fly out.

We have been told that our truck will be picked up Wednesday (the 9th) so hopefully, we will be at our home up north by the 11th so we can check it over when it’s delivered.

I don’t know when they’ll fly us out. I’ve been looking at flights to see if there are any from TPA to MBS. There are, but the price tags are unbelievably high. Most are over $1,000 for the two of us. Glad they’ll pick up the tab.

Yesterday I booked our return to Florida flights for October 9th.

United Airlines UA 5044
Lv 10:30 am
Saginaw, MI, US (MBS)

Ar 10:45 am
Chicago, IL, US (ORD – O’Hare)
Duration: 1h 15m

3h 30m Layover (We’ll have ample time for a nice lunch.)

=========================================================

Second Lap Flight from Chicago to Tri-City

United Airlines UA 397
Lv 2:15 pm
Chicago, IL, US (ORD – O’Hare)

Ar 5:54 pm
Tampa, FL, US (TPA)

The total price for our two one-way tickets was about $440.

I also made sure that the airlines are aware that John will need to have a wheelchair escort and he’ll be using oxygen. The seats for our longest flight (from Chicago to Tampa) will be in the first row of the economy section. That’ll be perfect for John with his long legs. The seats will be easier for him to access because they’ll be closer to the entry door.

Buying these tickets has assured that we don’t have to worry about going back in October, that is if we ever get home.

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Helpers

Sunday a whole crew of helpful friends stopped over to assist us loading stuff into our truck and moving our lanai and patio furniture into the garage. They brought coffee cake and other brunch items. It ended up being a nice gathering. We don’t have much left to do.

We still don’t know when we’re flying out. We’re aiming for Monday, May 7th, or Tuesday or Wednesday.

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